Research study Program year 2025 Source: CMS Open Payments

Pompe Disease Registry

ClinicalTrials.gov NCT00231400

Research payments

$1,065,148

416 payments

Through program year 2025, $1,065,148 in research payments was reported against Pompe Disease Registry, across 416 payments, paid by Sanofi US Services Inc..

Paid by
Sanofi US Services Inc.
ClinicalTrials.gov
NCT00231400

By program year

3 rows
Year Kind Amount Payments
2025 Research $431,788 145
2024 Research $266,420 118
2023 Research $366,940 153

Breakdown

Who paid Research payments · program years 2023–2025
  1. Sanofi US Services Inc. $1,065,148 416 payments
Who received the money Research payments · program years 2023–2025
  1. Duke University Department Of Medicine Clinical Res Organisation paid for research $124,696 5 payments
  2. Duke University Organisation paid for research $114,087 7 payments
  3. Uci Medical Center Teaching hospital · CA $84,085 13 payments
  4. Duke Urology Clinic Organisation paid for research $72,375 2 payments
  5. Childrens Hospital Medical Center Teaching hospital · OH $61,789 13 payments
  6. Emory University Hospital Teaching hospital · GA $44,651 11 payments
  7. Lysosomal And Rare Disorders Research And Treatment Center Inc Organisation paid for research $35,350 11 payments
  8. Lsd Data Registry Site Llc Organisation paid for research $31,800 11 payments
  9. University of Florida Organisation paid for research $30,550 14 payments
  10. Childrens Research Institute Organisation paid for research $26,025 7 payments

Usually the institution or organisation running the study, not a person.

Every payment, record by record

Date, amount, who was paid and what for — filter by year and kind, or download as CSV, free, in files of 5,000 rows.

Principal investigators named

7 shown

Named on the study's payments. Being named is not being paid: the money in the figures above went to the recipients listed, not necessarily to these people.

What you are looking at

Research payments are tied to a study. Being named on a study as a principal investigator is reported separately from being paid as a recipient, and the two are not the same thing — a named investigator has not necessarily received the money.

Provenance

Source: CMS Open Payments · through program year 2025

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