Product Program year 2023 Source: CMS Open Payments

Procysbi

Drug Procysbi

NDC 49663-001-06

Open in the dashboard

General payments

$1,048,202

1,164 payments

Research payments

$94,127

2 payments

Through program year 2023, $1,048,202 in general payments and $94,127 in research payments were reported against Procysbi (Procysbi).

No combined total These are different kinds of money, reported under different rules. A meal and a clinical trial grant do not add up to anything meaningful, so this site does not add them.

By program year

7 rows
Year Kind Amount Payments
2023 General $242,389 334
2022 General $242,684 325
2021 General $214,599 157
2020 General $160,141 111
2020 Research $53,734 1
2019 General $188,389 237
2019 Research $40,393 1

Breakdown

Who paid General payments · program years 2019–2023
  1. Horizon Therapeutics plc $1,048,202 1,164 payments
Top recipients General payments · program year 2023
  1. Mark Benfield Pediatric Nephrology · Cullman, AL $50,622 21% · 50 payments
  2. Joshua Zaritsky Pediatric Nephrology · Phoenix, AZ $27,482 11% · 27 payments
  3. Mark Joseph Pediatric Nephrology · Portland, OR $25,156 10% · 26 payments
  4. Bonnie Smeryage Nurse Practitioner, Pediatrics · Hollywood, FL $19,341 8% · 35 payments
  5. Katherine Twombley Pediatric Nephrology · Jacksonville, FL $12,868 5% · 11 payments

The top 5 of 85 recipients; each share is of general payments naming this product in 2023.

The top 25 recipients, free in the app

Specialties paid General payments · program year 2023
  1. Pediatric Nephrology Pediatrics $154,406 64% · 25 practitioners
  2. Nephrology Internal Medicine $49,919 21% · 33 practitioners
  3. Nurse Practitioner, Pediatrics Nurse Practitioner $19,366 8% · 2 practitioners
  4. Neurology Psychiatry & Neurology $8,604 4% · 1 practitioner
  5. Neurology with Special Qualifications in Child Neurology Psychiatry & Neurology $7,710 3% · 1 practitioner

The top 5 of 14 specialties; each share is of general payments naming this product to practitioners with a specialty in 2023. Each practitioner is counted under their primary specialty.

The top 25 specialties, free in the app

Where the money went General payments · program year 2023
  1. Alabama $63,566 26% · 3 recipients
  2. Texas $27,524 11% · 3 recipients
  3. Oregon $25,156 10% · 1 recipient
  4. Massachusetts $21,903 9% · 3 recipients
  5. Florida $19,341 8% · 1 recipient

The top 5 of 25 states; each share is of general payments naming this product in 2023 where a state was reported.

The top 25 states, free in the app

Prescribed to Medicare patients

Part D · data year 2024

Part D claims

279

Prescriptions dispensed, refills included

Drug cost

$19,633,999

Paid at the pharmacy, in all

Prescribers

16

With 11 or more claims of it

Medicare Part D drugs matched to PROCYSBI, 2024
Part D drug Name match Relative to the largest Prescribers Claims Drug cost
Procysbi Cysteamine Bitartrate Same name 16 279 $19,633,999

Matched to this product by name; CMS does not link its files to Open Payments, so a similar name can be a different strength, form or brand. Prescriber counts include only prescribers with 11 or more claims of the drug, because CMS publishes nothing below that. Part D covers drugs dispensed to Medicare beneficiaries at a pharmacy; it does not include drugs given in a clinic or hospital, or patients with other insurance.

Largest prescribers

First 5 of 16 by claims · 2024

Two separate records. Claims come from Medicare and related payments from Open Payments. They are shown in one row because they name the same product; they do not show that a payment affected a prescription.

The prescribers with the most Part D claims of this drug in 2024
Prescriber Specialty State Claims Drug cost Related payments
Laurence Greenbaum Pediatric Medicine GA 44 $3,672,620 None on record
Brent Miller Nephrology IN 28 $1,859,099 None on record
Timothy Curley Nephrology VA 26 $1,648,167 $25
Jignesh Shah Nephrology MO 24 $172,909 None on record
Paul Grimm Nephrology CA 22 $1,983,536 $16,401

"No profile" means the prescriber has no Open Payments record here; "None on record" means no payment naming this product in the payment year. Related payments are general payments, and one that names several products is split evenly, so an amount is payments related to the product, not money paid for it. The list is the prescribers with the most claims, up to 100 per drug.

See all 16 in the dashboard with a free account
1,164 general · 2 research

Every payment, record by record

Date, amount, who was paid and what for — filter by year and kind, or download as CSV, free, in files of 5,000 rows.

What you are looking at

Manufacturers name the drug, biological or device a payment relates to. CMS does not give products their own identifiers, so a product here is assembled from how it was reported — a brand may appear under more than one spelling, and this page covers one of them rather than the brand as a whole.

Provenance

Source: CMS Open Payments · through program year 2023

We reproduce what manufacturers reported. We do not verify, edit or correct the underlying records.

A payment record is not evidence of wrongdoing. Financial relationships between industry and medicine are legal, common and often necessary for research. Who Paid My Doc reports what was disclosed; it does not judge it.

Who Paid My Doc is independent and is not affiliated with, endorsed by or sponsored by CMS or any U.S. government agency. It is not a consumer reporting agency and this is not a consumer report; do not use it for decisions covered by the Fair Credit Reporting Act.

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