Who Paid My Doc
Daybue
Drug Rett Syndrome
NDC 63090-660-01
General payments
$1,262,512
Research payments
$437,589
Through program year 2025, $1,262,512 in general payments and $437,589 in research payments were reported against Daybue (Rett Syndrome).
No combined total These are different kinds of money, reported under different rules. A meal and a clinical trial grant do not add up to anything meaningful, so this site does not add them.
By program year
4 rows| Year | Kind | Amount | Payments |
|---|---|---|---|
| 2025 | General | $670,334 | 4,807 |
| 2024 | General | $387,973 | 3,167 |
| 2023 | General | $204,205 | 1,951 |
| 2023 | Research | $437,589 | 72 |
Breakdown
The top 5 of the 100 largest recipients; each share is of general payments naming this product in 2025.
The top 5 of 89 specialties; each share is of general payments naming this product to practitioners with a specialty in 2025. Each practitioner is counted under their primary specialty.
The top 5 of 50 states; each share is of general payments naming this product in 2025 where a state was reported.
Prescribed to Medicare patients
Part D · data year 2024Part D claims
368
Drug cost
$21,320,128
Prescribers
21
| Part D drug | Name match | Relative to the largest | Prescribers | Claims | Drug cost |
|---|---|---|---|---|---|
| Daybue Trofinetide | Same name | 21 | 368 | $21,320,128 |
Matched to this product by name; CMS does not link its files to Open Payments, so a similar name can be a different strength, form or brand. Prescriber counts include only prescribers with 11 or more claims of the drug, because CMS publishes nothing below that. Part D covers drugs dispensed to Medicare beneficiaries at a pharmacy; it does not include drugs given in a clinic or hospital, or patients with other insurance.
Largest prescribers
First 5 of 21 by claims · 2024Two separate records. Claims come from Medicare and related payments from Open Payments. They are shown in one row because they name the same product; they do not show that a payment affected a prescription.
| Prescriber | Specialty | State | Claims | Drug cost | Related payments |
|---|---|---|---|---|---|
| Constance Smith Hicks | Neurology | MD | 52 | $3,498,679 | $142 |
| Davut Pehlivan | Neurology | TX | 37 | $1,897,876 | $635 |
| Judith Weisenberg | Neurology | MO | 27 | $1,491,405 | None on record |
| Eric Marsh | Neurology | PA | 23 | $1,575,866 | None on record |
| Diana Cejas | Neurology | LA | 23 | $1,224,029 | None on record |
"No profile" means the prescriber has no Open Payments record here; "None on record" means no payment naming this product in the payment year. Related payments are general payments, and one that names several products is split evenly, so an amount is payments related to the product, not money paid for it. The list is the prescribers with the most claims, up to 100 per drug.
See all 21 in the dashboard with a free accountRecords
9,925 general · 72 researchEvery payment, record by record
Date, amount, who was paid and what for — filter by year and kind, or download as CSV, free, in files of 5,000 rows.
What you are looking at
Manufacturers name the drug, biological or device a payment relates to. CMS does not give products their own identifiers, so a product here is assembled from how it was reported — a brand may appear under more than one spelling, and this page covers one of them rather than the brand as a whole.